Abstract:Background:Parenting a child with Autism Spectrum Disorder (ASD) brings emotional, financial, and social challenges. Caregivers face overwhelming responsibilities, limited resources, and persistent stigma. Despite growing awareness, support systems remain inadequate, leaving families with minimal help. Understanding their lived experiences is essential for shaping effective support systems and policies. Methods:This qualitative phenomenological study explored the experiences of 11 parents of children aged 3 to 15 with a formal ASD diagnosis. Participants were selected using purposive snowball sampling. Exclusion criteria included non-parental caregivers, lack of diagnosis, or conditions affecting participation. Semi-structured interviews were conducted in person or online, based on preference. Thematic analysis identified recurring patterns while maintaining ethical standards and confidentiality. Results:Seven core themes emerged: Unveiling Autism Realities captured the initial shock and grief; A Heart that Knows No Bound reflected emotional strain and deep love; The Price of Unconditional Love highlighted financial and caregiving burdens; Strength in Solitude revealed isolation due to limited support; A Spark in the Shadows emphasized faith as a coping tool; Nurturing the Spectrum involved creative parenting and sacrifice; and A Journey of Small Victories showcased resilience through progress. These themes reveal both struggles and adaptive strengths. Conclusion:The study highlights the urgent need for accessible support, affordable care, financial aid, inclusive education, and increased public awareness. Strengthening support networks and government programs is vital. Further research should explore long-term impacts and assess existing services. Collaboration among families, professionals, and policymakers is key to improving outcomes for those affected by ASD. Acknowledgements:The researchers thank Prof. Gilbert D. Bernardino Jr., RN, MPH, for his mentorship. This study was self-financed and received no external funding. Footnote:The study followed ethical standards, with informed consent and approval from the University of the Cordilleras Ethics Committee.
Keywords: Mental Health, Autism Spectrum Disorder, parental experiences, coping strategies
